Destination Unknown – My Journey with Parkinson’s, is an autobiography of Mr. Rajeev K Gupta, who is diagnosed with Young Onset Parkinson’s Disease. The book fills a long overdue void about personal experiences about Parkinson’s Disease, especially from Indian Context. It goes through the various phases from, ‘Overcoming the Shock’ attached with diagnosis of Parkinson’s disease in a young active professional life. The story leads on to explain the “Million Dollar Decision” on how and when to reveal the diagnosis to the family members and on professional front. It also gives insights about how to cope with the diagnosis, adapt and overcome, to win over this ‘Mental Game’. Mr. Gupta, further goes into the depth of various treatments he received, their benefits / limitations. Later, he continues on his decision on ‘Deep Brain Stimulation’ surgery and his whole experience from the point of considering it to the post-surgery outcomes. The book also gives a Q&A section, which will be helpful for all Parkinson’s disease patients, to understand about Parkinson’s disease and its treatment. Overall, a must read for every Young Onset Parkinson’s Disease Patients and their families. The Book is currently available on various online sellers including Amazon, Kobo, Google Play books and on publishers site (Notion Press).
A 5 yr child who is affected by a rare type of dystonia called DYT16 was managed in Vikram hospital, Bengaluru. Only about 10-12 cases have been described worldwide with this rare disease. The child was completely bed bound and dependent for all the activities. The child underwent Deep Brain Stimulation surgery (DBS), the youngest person to undergo this procedure in India till date. Its been 3 months now and the child is making great improvements. Kudos to all involved. Looking forward to hear more about the recovery curve about this rare disease
As a live TV audience watches, a neurosurgery team at UH Case Medical Center in Cleveland will perform an operation that has helped many Parkinson’s disease patients get significant relief from their debilitating symptoms—tremors, rigidity, stiffness, slowed movements and difficulty walking—and also enabled them to reduce their amount of medication.
Deep Brain Stimulation, or DBS, was pioneered as a Parkinson’s treatment by Dr. Alim-Louis Benabid, a neurosurgeon who also possessed a Ph.D. in physics. In the 1980s, patients were treated by surgically destroying parts of their brains where tremors originated, or using medication with unpleasant side-effects. In 1987, Benabid was performing a surgery using the then-standard method of burning away brain tissue with an electrode. As he tested various regions with electrical pulses, Benabid wondered what would happen if he used different frequencies. To his surprise, he found one that suppressed the patient’s tremor. “I thought, aha, this might be the solution,” he later recalled in a 2010 Lancet article.